by Beverly Simkin RN,PHN
Simkin, B. (1997). Understanding medications and medical interventions. In D. Chen (Ed.).
Effective practices in early intervention. Infants whose multiple disabilities include visual
impairment and hearing loss (pp.177-192). Northridge, CA: California State University,
Northridge, Department of Special Education (ERIC Document Reproduction Service No. ED
406-795).
The birth of a child who has a disability is a difficult and stressful time for a family. It is a time when parents must grieve the loss of the "perfect" baby that they had anticipated and deal with the medical and emotional complexities of the situation (Batshaw, 1991).
When the infant is finally discharged home from the hospital, the parents are generally overwhelmed with the "special care" that their baby needs. Besides feeding and infant care, medications, treatments and special equipment become part of the daily routine. Parents must learn to cope with their dependency on medical and paraprofessional personnel for advice and intervention.
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